Families w/ special needs children

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Families w/ special needs children

Holding to hope in devastating times, calling upon strength few know and emotional adjustments. All accomplished while existing in a world that has little awareness for the excellence that they have had to achieve.

Location: McDonough Georgia
Members: 18
Latest Activity: Oct 18, 2013

I was reading an article about how to stay a couple and not just a couple of parents. Although it was a good article, it clearly did not take into concederation the couple with a special needs child.  I found myself laughing at the suggestions in the article, such as making time to get away together alone at least one weekend a year.  For me and my husband, that is just not going to happen.

 

For years we've been heard this person say they wanted to help or that person.  But, when it comes down to it, no one is here. My husband and I have eachother and that's it.  So, just how does a couple stay a couple and not just a couple of parents when there is a special needs child involved that requires much attention and 24 hour care?

 

Through the years we've learned that love is sacrifice and with sacrifice comes much blessing.  My husband and I enjoy all our time together.  Through all the trials and trying times we've grown deep roots as a couple.  A weekend away together is probably not ever going to happen, but we make time here and there for a few hours alone.  It may be just to go to a nice dinner or even shopping.  At times I do long for some quiet time, and I see how those with "normal" families take for granted what they have.  But, I also know the blessing and the love of my not so normal family.  I know how with each hardship God brings us through, He always gives us a new sight of His kingdom.  And for that, we are truely blessed and very fortunate.  The normal family life will never see what we get to see and experience through what we have to do on a daily basis.

 

Discussion Forum

Making time to be a couple and not just a couple of parents with a special needs child can be very difficult. What are some of the ways you pull together and find time for each other?

Started by Kerrie Monti. Last reply by Charles Clack Jul 15, 2012. 3 Replies

Reading an article about how parents need to make time for eachother and take a weekend away together at least once a year sounded so good to me.  Although, I could tell the artical was not geared…Continue

God's Kids

Started by Dallas Haines Jul 6, 2012. 0 Replies

G'day Kerri, I have just been reading all the comments and discussion on the special needs page. I don't know too much about the subject,but two things I do know, one, ,is that God only gives kids…Continue

Sacrifice of Self

Started by Kerrie Monti. Last reply by tammy reisler Apr 13, 2011. 1 Reply

By far do I think I am perfect.  Nor do I think I can work on anything about me in my own power and chance things.  Only through the grace and mercy and love of God in my life working through the…Continue

Prayer for Justin...Our Special Needs Son

Started by Kerrie Monti. Last reply by Kerrie Monti Mar 25, 2011. 3 Replies

Last week we had to take our son to the doctor to have his hips rechecked.  He had two hip replacements done about a year ago and one of the hips looked as though it was coming out of socket again. …Continue

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Comment by mamatink77 on October 18, 2013 at 7:49pm

each day is a brand new day for us dealing with autism trials and hardships. i know God had a purpose from giving us such a miracle, sometimes i wonder why. he gives everyone around him so much laughter and fills us with so much joy

Comment by Kerrie Monti on March 25, 2011 at 10:13am

Wow this pollen here in Georgia!  Justin will be going with me tomorrow (if it doesn't rain) on an all day photo shoot.  I've got to pick up some Claritin for him and me.  I love being able to get him out a little, but I know the hot weather is coming.  Heat does not go well with him.  Fall and spring are my favorite times of year now.  It's so much easier to do things outside with him during those months.

He's got to were he goes through diapers like crazy!  He's in a size 6, and I'm not sure what he would go to next....I think the next size up is like really big for him.  I'm thankful he can still wear a 6!  Hope you all have a great weekend.

Kerrie

 

 

Comment by Michelle A Bekeza on March 22, 2011 at 3:39pm
I have been Blessed to work with several hundred special needs children over the past 13 years. I have seen way too many divorces due to the stress, strain and isolation that comes with raising a child that is outside the mainstream.  When my son was 3 and we were told he had autism we called out to anyone and everyone from prayers. Kirk O' the Valley Church in LA reached out and had a special person come in and take care of him so I could attend worship with my other 2 children. I will always be eternally grateful for them and that hand up. He fully recovered from all the traits and issues. He regained his speech and is a 4.0 high school junior with many friends and interests.He is saving along with us to buy him his 1st car. He is actually the best driver in the house!  Come long way from the little guy who screamed non stop if we took a different street home! You parents know what I mean. I encourge all of you to find a way to go to Church no matter how hard or tired you are. Or watch Church online as a family. Our precious children need the Word of God as much as we all do. It is my belief and experience that even our kids who seem to impacted to understand...It will reach them on some very special level. Blessings to you all...never, ever give up!
Comment by Cathy Warren on March 13, 2011 at 10:36pm
I was born with Cerebral Palsy and also have an older sister with the same thing.  We were not adopted.  A very rare thing to happen in the same family nonetheless God put two in one family.  I'm now 40 yrs. old and I would be more than happy to answer any questions that  anyone may have on the subject.
 

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